What kind of IBS is this?????

Question:

> OK, overdiagnosis man, the other option if your butt itches is that > you haven’t cleaned yourself properly. Wash carefully and see how you > do.

Or it could be worms ) or candida, or allergy, or, or, or. Butt itch is very common and usually harmless, though not nice.

Response:

I was tested about two years ago. THere was no damage and my symptoms have not gotten any worse, except for the development of a new symptom I didnt have at the time – the strange stomach noises. Other things, like the fatigue and flu-like feelings, might even be a little better than they were then. Not much. I was consuming a gluten filled diet at the time and my whole life prior to diagnosis. – Hide quoted text — Show quoted text -> Annemarie, were you biopsy diagnosed? Do you think the damage to the > gut is what delayed your healing? Do you think someone who is > gluten-sensitive but biopsy confirms no celiac damage would possibly > not take 4 years to feel better? > I was biopsied and blood tested for Celiac and all came back negative. > Slides reviewed by Joe Murray at Mayo. Healthy gut. (ok, Dr. Murray so > why do I have so much gas that smells like hell and strange noises all > the time, and tired all the time?) > Patrick > No biopsy. Family thing. My niece was the first to be diagnosed, she was > very sick in Australia (I’m in New Zealand) Her mother was very worried and > we both tried to work out what was wrong with her. I had heard of celiac > disease and thought it could be that so did internet searches. What I found > not only corresponded strongly with her, I ticked off lots of the symptoms > myself. So I went gluten free (silly me) then a month later had the blood > test. It came back negative, but only just. My daughter had a positive > blood test. My doc (sensible woman) said that I either had celiac disease, > or gluten intolerance and the treatment was the same. When I made mistakes > I had severe pain so there is no doubt that gluten is bad for me. > My niece was biopsy diagnosed. Of the rest of the family, my dad, and two > sisters also have it. We are sure there are others but they are not yet > ready, or sick enough to face up to it. > I have talked to lots of people and it takes time to come right. One friend > said for her it took about two years. One woman I met had to go on steroids > to aid the healing. I guess after years of damage it takes time to heal. > When you were tested were you gluten free already? > Annemarie > > > This is a very strange case of IBS that I have. Most of my life I’ve > > > been incredibly gassy, farting all the time. A few years ago the gas > > > changed, almost overnight, to that which can peel paint, if you know > > > what I mean. Last year my digestive system started making all kinds of > > > noises a lot of the time, gurgling, sloshing, swishing, not seeming to > > > correlate with eating or not eating. > > > Those are the most striking samples. Other than that, as long I avoid > > > greasy foods and get plenty of fiber such as psyllium or bran cereal, > > > my b.m.’s are quite normal and regular. > > > Greasy foods and caffeine give me cramps and very loose stools if not > > > full on Big D. If I dont have psyllium or bran cereal everyday I’m > > > struggling to get out these tiny little very unsatisfactory poops and > > > my butt itches. > > > However pretty much no matter what, good b.m.’s or not, the gas and > > > noises remain. > > > Very strange. Wouldnt you say? > > I’m no expert. I have read some of your other posts. > > I think > > You have been tested for celiac disease and had a negative result? > > Say you are on a low allergy gluten free diet? > > One thing I picked up here, bran is usually wheat bran? > > Your other symptoms sound very much as though they could be celiac > disease > > or gluten intolerance. I believe 20% of celiacs have constipation > rather > > than diarhea (I am never sure of the spelling of that darn word) anyway. > > For all but the most severely affected person in our family with celiac > > disease constipation is our problem. > > I assume you are dairy free. I think Dons idea of being completely > grain > > free for a while is probably a good idea. Get your roughage from prunes > or > > the like ). Many celiacs, or gluten intolerant people apparently need > a > > completely grain free diet for a while. > > Gas has certainly been a problem with me, but before going gluten free > and > > for a few months into the diet gas caused pain! > > I have been gluten free now 2yrs and 2 months ) Yes counting > > It is only in the last 4 or so months that I have really begun for feel > > well. Before that on the gluten free diet I did not feel sick, but not > well > > either, energy, well being, optimism, enjoying my body, losing weight. > > I was one of those celiacs who was a little overweight, though never > obese. > > You are going through a rough time, I hope you find the answers to your > > problems and find good health soon. > > Annemarie

Response:

Wow…yet another! Those are both valuable suggestions and I’ll look into them (physical therapy & pain management). Thanks again. [s] – Hide quoted text — Show quoted text – > No problem glad to help. You might ask you gi dr about physical therapy for > the pain you get at you incision site. I learned a lot when I went on how > to relax my muscles and help move the pain somewhat. Also I too have a > tolerance to medications and I go to a pain management dr to help me deal > with the pain. He is the one who sends me to physical therapy and does a lot > for me. Just a thought for you to check out. UM MOM Susan > Hi Susan! ) > (sorry for the long post that follows – I guess all can choose whether to > read or not, but I guess I write when inspired. Hope u have a moment > –bewteen bathroom trips — lol — to read, susan) > I wanna thank you for how sweet and supportive you have been towards me. I > appreciate how much you have made me feel welcome. I never thought myself > much of a "joiner" but then I had never felt so isolated in regards to > such > an intractable and difficult-to-discuss problem. I really feel "at home" > here. I can only hope I will get to "meet/greet" the *other* Susan who > made > this ng possible. > I never thought about *how much* Bentyl I take, so thanks for bringing > that > to my attention. I am taking the blue ones – 10 mg each x 4x’s a day. > Since > I generally have such a high tolerance ( I am serious! I have a terrible > time getting relief from pain meds, etc.), I wonder if this is also a > factor > in why I am so underwhelmed in how I perceive its efficacy for me to be. > But then again, I really notice the blurred vision sometimes when I have > diligently taken it 4 times a day so maybe an increase won’t help me much > either and possibly bother my eyes even more. > I appreciate your sharing with me *HOW* you take it (i.e. Specifically > BEFORE meals) since I was just taking it on a schedule w/ my 16 Pentasa’s > a > day. You have really enlightened me on how it might help best! Although I > tend to "graze" when I eat… Small quantities as needed throughout the > day. > You know? This discussion led me to a striking realization, I *really* > love > this ng for how it has helped me – especially the support but also > shedding > light on things I would not have considered before. Like waaay before I > was > diagnosed…as a young child … I was *always* the last one to leave the > dinner table, I just could NOT eat much at one time. I had always caught a > lot of flack for that from the "clean your plate" brigade. I also better > understand that NO WONDER after a holiday meal I would be in the bathroom > and my sisters, would be already up and cleaning up after the meal. I > would > be too fatigued & hurting and of course nobody wants to broadcast the > "I’ll > be a long time in the bathroom" behavior –trying to HIDE it is more like > it. > I *always* have felt guilty about this, but couldn’t help it. Not to use > my > illneses as an excuse, but its been a real Eureka for me in some things > that > have puzzled me for a long time. Yet another way this ng has helped me. > In that vein, I also appreciated so much reading your post, Annie (if u > are > reading this) in RE: IBD Deterioration rate. Thank you so much for > sharing > that. I was really heartstruck by *your* experiences as a child. There is > no > question that enlightenment of this condition can help spare some of the > suffering (in silence) when we or others don’t know what is wrong with us. > My GI had given me Levbid back before they discovered my CD (when she > thought it was IBS that was causing my pain). Since I was in such an acute > flare at the time, (which led to my hospitalizations), neither the Bentyl > or > the Levbid seemed to do much for me. > One question I have for you and the ng is, Are there other anti-spasmodics > besides Levbid & Bentyl (aside from their generic equivalents) worth > considering? > Thanks again for sharing your experience with me, Susan. I suffer from > bad > spasms so I can’t give up. (right now I am also having disturbingly SHARP > pains at the site of my illeum surgery — I don’t want to panic since they > are not so constant yet, but boy are they bad!) I will certainly share > what > you have told me with my doctor and discuss amending my treatment with > him. > I hope it helps. Fingers crossed. > Thanks! > [s] >> Hi Susan! What is the miligrams of the Bentyl you are taking? I take > the >> 20 mg and take it (now only when needed) 15 to 20 minutes before I eat. > I >> also have the Levbid, which I now take when needed, which helps. I am > on >> both if I am severe since I had surgery.When I am bad what I do is take > the >> Bentyl 20mg before I eat, and then if I still have problems I take the >> Levbid 15 -20 afterwards. It doesn’t stop it all but I can tell it does >> ease it a lot compared to not taking it. Sometimes the medication is >> helping but since you are taking it you really can’t tell. UM MOM Susan >>> Hi Mary & Susan & Patrick — >>> Since you were talking abou Bentyl – I thought I would ask a question > of >> my >>> own – I am not really altogether sure if the Bentyl helps me or not. Is > it >>> meant to be taken over a period of time before it helps with symptoms? > My >> GI >>> doctor now has me on it 4 times a day. Unlike my Pentasa & 6mp, this > one >> was >>> rather arbitrary, I think. My GP had prescribed it before I went into > the >>> hospital and I noticed that it did nothing to keep me out of the > hospital, >>> so I wonder how well it works. Is it supposed to be rather immediate? I >>> still feel spasms. And I notice blurred vision as a result of taking > it. >> So >>> at times I wish not to take it. Does anybody take Levbid instead and > have >>> anything to share in that regard as well? >>> Thanks >>> [s] >>>> the Bentyl does work. >>>> Mary >>>>> No they are not severe meds. The Bentyl can make some people drowsy. >> It >>>>> helps a little with the noise and the pains from spasms but it is not >> in >>>>> anyway a magic bullet. You also need to adjust your diet to what > your >>>> body >>>>> will accept. Diet is very personal because everyone is different on >> what >>>>> they can and cannot eat. UM MOM Susan >>>>>> Susan, are antispasmodics really severe medications? Do they tend to >>>>>> have rough side effects like make other symptoms worse? >>>>>> Also, would an antispasmodic be likely to alleviate the strange >>>>>> noises? >>>>>>> You can ask your dr about an antispasmatic like Bentyl or Levbid to >>>> help >>>>>>> with the spasms in the colon. It does not stop the gas but > sometimes >>>>> can >>>>>>> help eleviate the gas pains and help the gas to escape. Take them >>>> 15-20 >>>>>>> minutes prior to eating. UM MOM Susan >>>>>>>> This is a very strange case of IBS that I have. Most of my life > I’ve >>>>>>>> been incredibly gassy, farting all the time. A few years ago the > gas >>>>>>>> changed, almost overnight, to that which can peel paint, if you > know >>>>>>>> what I mean. Last year my digestive system started making all > kinds >>>> of >>>>>>>> noises a lot of the time, gurgling, sloshing, swishing, not > seeming >>>> to >>>>>>>> correlate with eating or not eating. >>>>>>>> Those are the most striking samples. Other than that, as long I >>>> avoid >>>>>>>> greasy foods and get plenty of fiber such as psyllium or bran >>>> cereal, >>>>>>>> my b.m.’s are quite normal and regular. >>>>>>>> Greasy foods and caffeine give me cramps and very loose stools if >>>> not >>>>>>>> full on Big D. If I dont have psyllium or bran cereal everyday I’m >>>>>>>> struggling to get out these tiny little very unsatisfactory poops >>>> and >>>>>>>> my butt itches. >>>>>>>> However pretty much no matter what, good b.m.’s or not, the gas > and >>>>>>>> noises remain. >>>>>>>> Very strange. Wouldnt you say?

Response:

No problem glad to help. You might ask you gi dr about physical therapy for the pain you get at you incision site. I learned a lot when I went on how to relax my muscles and help move the pain somewhat. Also I too have a tolerance to medications and I go to a pain management dr to help me deal with the pain. He is the one who sends me to physical therapy and does a lot for me. Just a thought for you to check out. UM MOM Susan

– Hide quoted text — Show quoted text -> Hi Susan! ) > (sorry for the long post that follows – I guess all can choose whether to > read or not, but I guess I write when inspired. Hope u have a moment > –bewteen bathroom trips — lol — to read, susan) > I wanna thank you for how sweet and supportive you have been towards me. I > appreciate how much you have made me feel welcome. I never thought myself > much of a "joiner" but then I had never felt so isolated in regards to such > an intractable and difficult-to-discuss problem. I really feel "at home" > here. I can only hope I will get to "meet/greet" the *other* Susan who made > this ng possible. > I never thought about *how much* Bentyl I take, so thanks for bringing that > to my attention. I am taking the blue ones – 10 mg each x 4x’s a day. Since > I generally have such a high tolerance ( I am serious! I have a terrible > time getting relief from pain meds, etc.), I wonder if this is also a factor > in why I am so underwhelmed in how I perceive its efficacy for me to be. > But then again, I really notice the blurred vision sometimes when I have > diligently taken it 4 times a day so maybe an increase won’t help me much > either and possibly bother my eyes even more. > I appreciate your sharing with me *HOW* you take it (i.e. Specifically > BEFORE meals) since I was just taking it on a schedule w/ my 16 Pentasa’s a > day. You have really enlightened me on how it might help best! Although I > tend to "graze" when I eat… Small quantities as needed throughout the day. > You know? This discussion led me to a striking realization, I *really* love > this ng for how it has helped me – especially the support but also shedding > light on things I would not have considered before. Like waaay before I was > diagnosed…as a young child … I was *always* the last one to leave the > dinner table, I just could NOT eat much at one time. I had always caught a > lot of flack for that from the "clean your plate" brigade. I also better > understand that NO WONDER after a holiday meal I would be in the bathroom > and my sisters, would be already up and cleaning up after the meal. I would > be too fatigued & hurting and of course nobody wants to broadcast the "I’ll > be a long time in the bathroom" behavior –trying to HIDE it is more like > it. > I *always* have felt guilty about this, but couldn’t help it. Not to use my > illneses as an excuse, but its been a real Eureka for me in some things that > have puzzled me for a long time. Yet another way this ng has helped me. > In that vein, I also appreciated so much reading your post, Annie (if u are > reading this) in RE: IBD Deterioration rate. Thank you so much for sharing > that. I was really heartstruck by *your* experiences as a child. There is no > question that enlightenment of this condition can help spare some of the > suffering (in silence) when we or others don’t know what is wrong with us. > My GI had given me Levbid back before they discovered my CD (when she > thought it was IBS that was causing my pain). Since I was in such an acute > flare at the time, (which led to my hospitalizations), neither the Bentyl or > the Levbid seemed to do much for me. > One question I have for you and the ng is, Are there other anti-spasmodics > besides Levbid & Bentyl (aside from their generic equivalents) worth > considering? > Thanks again for sharing your experience with me, Susan. I suffer from bad > spasms so I can’t give up. (right now I am also having disturbingly SHARP > pains at the site of my illeum surgery — I don’t want to panic since they > are not so constant yet, but boy are they bad!) I will certainly share what > you have told me with my doctor and discuss amending my treatment with him. > I hope it helps. Fingers crossed. > Thanks! > [s] > Hi Susan! What is the miligrams of the Bentyl you are taking? I take the > 20 mg and take it (now only when needed) 15 to 20 minutes before I eat. I > also have the Levbid, which I now take when needed, which helps. I am on > both if I am severe since I had surgery.When I am bad what I do is take the > Bentyl 20mg before I eat, and then if I still have problems I take the > Levbid 15 -20 afterwards. It doesn’t stop it all but I can tell it does > ease it a lot compared to not taking it. Sometimes the medication is > helping but since you are taking it you really can’t tell. UM MOM Susan >> Hi Mary & Susan & Patrick — >> Since you were talking abou Bentyl – I thought I would ask a question of > my >> own – I am not really altogether sure if the Bentyl helps me or not. Is it >> meant to be taken over a period of time before it helps with symptoms? My > GI >> doctor now has me on it 4 times a day. Unlike my Pentasa & 6mp, this one > was >> rather arbitrary, I think. My GP had prescribed it before I went into the >> hospital and I noticed that it did nothing to keep me out of the hospital, >> so I wonder how well it works. Is it supposed to be rather immediate? I >> still feel spasms. And I notice blurred vision as a result of taking it. > So >> at times I wish not to take it. Does anybody take Levbid instead and have >> anything to share in that regard as well? >> Thanks >> [s] >>> the Bentyl does work. >>> Mary >>>> No they are not severe meds. The Bentyl can make some people drowsy. > It >>>> helps a little with the noise and the pains from spasms but it is not > in >>>> anyway a magic bullet. You also need to adjust your diet to what your >>> body >>>> will accept. Diet is very personal because everyone is different on > what >>>> they can and cannot eat. UM MOM Susan >>>>> Susan, are antispasmodics really severe medications? Do they tend to >>>>> have rough side effects like make other symptoms worse? >>>>> Also, would an antispasmodic be likely to alleviate the strange >>>>> noises? >>>>>> You can ask your dr about an antispasmatic like Bentyl or Levbid to >>> help >>>>>> with the spasms in the colon. It does not stop the gas but sometimes >>>> can >>>>>> help eleviate the gas pains and help the gas to escape. Take them >>> 15-20 >>>>>> minutes prior to eating. UM MOM Susan >>>>>>> This is a very strange case of IBS that I have. Most of my life I’ve >>>>>>> been incredibly gassy, farting all the time. A few years ago the gas >>>>>>> changed, almost overnight, to that which can peel paint, if you know >>>>>>> what I mean. Last year my digestive system started making all kinds >>> of >>>>>>> noises a lot of the time, gurgling, sloshing, swishing, not seeming >>> to >>>>>>> correlate with eating or not eating. >>>>>>> Those are the most striking samples. Other than that, as long I >>> avoid >>>>>>> greasy foods and get plenty of fiber such as psyllium or bran >>> cereal, >>>>>>> my b.m.’s are quite normal and regular. >>>>>>> Greasy foods and caffeine give me cramps and very loose stools if >>> not >>>>>>> full on Big D. If I dont have psyllium or bran cereal everyday I’m >>>>>>> struggling to get out these tiny little very unsatisfactory poops >>> and >>>>>>> my butt itches. >>>>>>> However pretty much no matter what, good b.m.’s or not, the gas and >>>>>>> noises remain. >>>>>>> Very strange. Wouldnt you say?

Response:

OK, overdiagnosis man, the other option if your butt itches is that you haven’t cleaned yourself properly. Wash carefully and see how you do. – Hide quoted text — Show quoted text -> Those are the most striking samples. Other than that, as long I avoid > greasy foods and get plenty of fiber such as psyllium or bran cereal, > my b.m.’s are quite normal and regular. > Greasy foods and caffeine give me cramps and very loose stools if not > full on Big D. If I dont have psyllium or bran cereal everyday I’m > struggling to get out these tiny little very unsatisfactory poops and > my butt itches. > If your butt iches, it’s a clear sign that you have a bacterial overgrowth > in your intestines, probably candida. > I got rid of that with a sugar-free diet, hydrochoric acid+enzyme > supplements, garlic and other anti-fungal herbal teas. > I want to reiterate my previous advice, go and see a gastroenterologist, > your digestive system clearly isn’t working and it can be quite dangerous > since no matter how good the food is you eat, you’ll still suffer from > malnutrition if you can’t absorb adequate vitamins and minerals. > Cheers, > Mark.

Response:

Hi Susan! ) (sorry for the long post that follows – I guess all can choose whether to read or not, but I guess I write when inspired. Hope u have a moment –bewteen bathroom trips — lol — to read, susan) I wanna thank you for how sweet and supportive you have been towards me. I appreciate how much you have made me feel welcome. I never thought myself much of a "joiner" but then I had never felt so isolated in regards to such an intractable and difficult-to-discuss problem. I really feel "at home" here. I can only hope I will get to "meet/greet" the *other* Susan who made this ng possible. I never thought about *how much* Bentyl I take, so thanks for bringing that to my attention. I am taking the blue ones – 10 mg each x 4x’s a day. Since I generally have such a high tolerance ( I am serious! I have a terrible time getting relief from pain meds, etc.), I wonder if this is also a factor in why I am so underwhelmed in how I perceive its efficacy for me to be. But then again, I really notice the blurred vision sometimes when I have diligently taken it 4 times a day so maybe an increase won’t help me much either and possibly bother my eyes even more. I appreciate your sharing with me *HOW* you take it (i.e. Specifically BEFORE meals) since I was just taking it on a schedule w/ my 16 Pentasa’s a day. You have really enlightened me on how it might help best! Although I tend to "graze" when I eat… Small quantities as needed throughout the day. You know? This discussion led me to a striking realization, I *really* love this ng for how it has helped me – especially the support but also shedding light on things I would not have considered before. Like waaay before I was diagnosed…as a young child … I was *always* the last one to leave the dinner table, I just could NOT eat much at one time. I had always caught a lot of flack for that from the "clean your plate" brigade. I also better understand that NO WONDER after a holiday meal I would be in the bathroom and my sisters, would be already up and cleaning up after the meal. I would be too fatigued & hurting and of course nobody wants to broadcast the "I’ll be a long time in the bathroom" behavior –trying to HIDE it is more like it. I *always* have felt guilty about this, but couldn’t help it. Not to use my illneses as an excuse, but its been a real Eureka for me in some things that have puzzled me for a long time. Yet another way this ng has helped me. In that vein, I also appreciated so much reading your post, Annie (if u are reading this) in RE: IBD Deterioration rate. Thank you so much for sharing that. I was really heartstruck by *your* experiences as a child. There is no question that enlightenment of this condition can help spare some of the suffering (in silence) when we or others don’t know what is wrong with us. My GI had given me Levbid back before they discovered my CD (when she thought it was IBS that was causing my pain). Since I was in such an acute flare at the time, (which led to my hospitalizations), neither the Bentyl or the Levbid seemed to do much for me. One question I have for you and the ng is, Are there other anti-spasmodics besides Levbid & Bentyl (aside from their generic equivalents) worth considering? Thanks again for sharing your experience with me, Susan. I suffer from bad spasms so I can’t give up. (right now I am also having disturbingly SHARP pains at the site of my illeum surgery — I don’t want to panic since they are not so constant yet, but boy are they bad!) I will certainly share what you have told me with my doctor and discuss amending my treatment with him. I hope it helps. Fingers crossed. Thanks! [s] – Hide quoted text — Show quoted text – > Hi Susan! What is the miligrams of the Bentyl you are taking? I take the > 20 mg and take it (now only when needed) 15 to 20 minutes before I eat. I > also have the Levbid, which I now take when needed, which helps. I am on > both if I am severe since I had surgery.When I am bad what I do is take the > Bentyl 20mg before I eat, and then if I still have problems I take the > Levbid 15 -20 afterwards. It doesn’t stop it all but I can tell it does > ease it a lot compared to not taking it. Sometimes the medication is > helping but since you are taking it you really can’t tell. UM MOM Susan > Hi Mary & Susan & Patrick — > Since you were talking abou Bentyl – I thought I would ask a question of > my > own – I am not really altogether sure if the Bentyl helps me or not. Is it > meant to be taken over a period of time before it helps with symptoms? My > GI > doctor now has me on it 4 times a day. Unlike my Pentasa & 6mp, this one > was > rather arbitrary, I think. My GP had prescribed it before I went into the > hospital and I noticed that it did nothing to keep me out of the hospital, > so I wonder how well it works. Is it supposed to be rather immediate? I > still feel spasms. And I notice blurred vision as a result of taking it. > So > at times I wish not to take it. Does anybody take Levbid instead and have > anything to share in that regard as well? > Thanks > [s] >> the Bentyl does work. >> Mary >>> No they are not severe meds. The Bentyl can make some people drowsy. > It >>> helps a little with the noise and the pains from spasms but it is not > in >>> anyway a magic bullet. You also need to adjust your diet to what your >> body >>> will accept. Diet is very personal because everyone is different on > what >>> they can and cannot eat. UM MOM Susan >>>> Susan, are antispasmodics really severe medications? Do they tend to >>>> have rough side effects like make other symptoms worse? >>>> Also, would an antispasmodic be likely to alleviate the strange >>>> noises? >>>>> You can ask your dr about an antispasmatic like Bentyl or Levbid to >> help >>>>> with the spasms in the colon. It does not stop the gas but sometimes >>> can >>>>> help eleviate the gas pains and help the gas to escape. Take them >> 15-20 >>>>> minutes prior to eating. UM MOM Susan >>>>>> This is a very strange case of IBS that I have. Most of my life I’ve >>>>>> been incredibly gassy, farting all the time. A few years ago the gas >>>>>> changed, almost overnight, to that which can peel paint, if you know >>>>>> what I mean. Last year my digestive system started making all kinds >> of >>>>>> noises a lot of the time, gurgling, sloshing, swishing, not seeming >> to >>>>>> correlate with eating or not eating. >>>>>> Those are the most striking samples. Other than that, as long I >> avoid >>>>>> greasy foods and get plenty of fiber such as psyllium or bran >> cereal, >>>>>> my b.m.’s are quite normal and regular. >>>>>> Greasy foods and caffeine give me cramps and very loose stools if >> not >>>>>> full on Big D. If I dont have psyllium or bran cereal everyday I’m >>>>>> struggling to get out these tiny little very unsatisfactory poops >> and >>>>>> my butt itches. >>>>>> However pretty much no matter what, good b.m.’s or not, the gas and >>>>>> noises remain. >>>>>> Very strange. Wouldnt you say?

Response:

> Annemarie, were you biopsy diagnosed? Do you think the damage to the > gut is what delayed your healing? Do you think someone who is > gluten-sensitive but biopsy confirms no celiac damage would possibly > not take 4 years to feel better? > I was biopsied and blood tested for Celiac and all came back negative. > Slides reviewed by Joe Murray at Mayo. Healthy gut. (ok, Dr. Murray so > why do I have so much gas that smells like hell and strange noises all > the time, and tired all the time?) > Patrick

No biopsy. Family thing. My niece was the first to be diagnosed, she was very sick in Australia (I’m in New Zealand) Her mother was very worried and we both tried to work out what was wrong with her. I had heard of celiac disease and thought it could be that so did internet searches. What I found not only corresponded strongly with her, I ticked off lots of the symptoms myself. So I went gluten free (silly me) then a month later had the blood test. It came back negative, but only just. My daughter had a positive blood test. My doc (sensible woman) said that I either had celiac disease, or gluten intolerance and the treatment was the same. When I made mistakes I had severe pain so there is no doubt that gluten is bad for me. My niece was biopsy diagnosed. Of the rest of the family, my dad, and two sisters also have it. We are sure there are others but they are not yet ready, or sick enough to face up to it. I have talked to lots of people and it takes time to come right. One friend said for her it took about two years. One woman I met had to go on steroids to aid the healing. I guess after years of damage it takes time to heal. When you were tested were you gluten free already? Annemarie

– Hide quoted text — Show quoted text -> > This is a very strange case of IBS that I have. Most of my life I’ve > > been incredibly gassy, farting all the time. A few years ago the gas > > changed, almost overnight, to that which can peel paint, if you know > > what I mean. Last year my digestive system started making all kinds of > > noises a lot of the time, gurgling, sloshing, swishing, not seeming to > > correlate with eating or not eating. > > Those are the most striking samples. Other than that, as long I avoid > > greasy foods and get plenty of fiber such as psyllium or bran cereal, > > my b.m.’s are quite normal and regular. > > Greasy foods and caffeine give me cramps and very loose stools if not > > full on Big D. If I dont have psyllium or bran cereal everyday I’m > > struggling to get out these tiny little very unsatisfactory poops and > > my butt itches. > > However pretty much no matter what, good b.m.’s or not, the gas and > > noises remain. > > Very strange. Wouldnt you say? > I’m no expert. I have read some of your other posts. > I think > You have been tested for celiac disease and had a negative result? > Say you are on a low allergy gluten free diet? > One thing I picked up here, bran is usually wheat bran? > Your other symptoms sound very much as though they could be celiac disease > or gluten intolerance. I believe 20% of celiacs have constipation rather > than diarhea (I am never sure of the spelling of that darn word) anyway. > For all but the most severely affected person in our family with celiac > disease constipation is our problem. > I assume you are dairy free. I think Dons idea of being completely grain > free for a while is probably a good idea. Get your roughage from prunes or > the like ). Many celiacs, or gluten intolerant people apparently need a > completely grain free diet for a while. > Gas has certainly been a problem with me, but before going gluten free and > for a few months into the diet gas caused pain! > I have been gluten free now 2yrs and 2 months ) Yes counting > It is only in the last 4 or so months that I have really begun for feel > well. Before that on the gluten free diet I did not feel sick, but not well > either, energy, well being, optimism, enjoying my body, losing weight. > I was one of those celiacs who was a little overweight, though never obese. > You are going through a rough time, I hope you find the answers to your > problems and find good health soon. > Annemarie

Response:

Patrick have you had any surgeries? I got diagnosed with Celiac then tested (my gi was a slow ranger! LOL) to get a diagnosis of what my problem was. I went on the diet for celiac and found nothing different and then the tests proved I didn’t have Celiac found out over a year later with surgery that it was CD. I drink a lot of water and liquids and my meds and try to eat natural fibers in veggies which has helped with the stinkies most of the time. I still eat sugars and dairy which I did stop to see if it made any difference with me and it didn’t. I do find the sometimes fresh fruits and even fruit juices give my system a bad smell and lots of noise. I read that Celiac will also cause bad breath but I can’t remember where I saw it at. But from what I remember, and if I find my link I’ll post it, there is a breath test to see if you are reacting to glutten also you can be tested to see for lactose intollerance. I had all the tests done and I don’t have a problem with it. I try not to remove too much from my diet so that I have a chance to eat naturally more. I do have malabsorptions at times but I have been ok now for a good 6 months by just trying to get good things into me. UM MOM Susan

Response:

Annemarie, were you biopsy diagnosed? Do you think the damage to the gut is what delayed your healing? Do you think someone who is gluten-sensitive but biopsy confirms no celiac damage would possibly not take 4 years to feel better? I was biopsied and blood tested for Celiac and all came back negative. Slides reviewed by Joe Murray at Mayo. Healthy gut. (ok, Dr. Murray so why do I have so much gas that smells like hell and strange noises all the time, and tired all the time?) Patrick – Hide quoted text — Show quoted text -> This is a very strange case of IBS that I have. Most of my life I’ve > been incredibly gassy, farting all the time. A few years ago the gas > changed, almost overnight, to that which can peel paint, if you know > what I mean. Last year my digestive system started making all kinds of > noises a lot of the time, gurgling, sloshing, swishing, not seeming to > correlate with eating or not eating. > Those are the most striking samples. Other than that, as long I avoid > greasy foods and get plenty of fiber such as psyllium or bran cereal, > my b.m.’s are quite normal and regular. > Greasy foods and caffeine give me cramps and very loose stools if not > full on Big D. If I dont have psyllium or bran cereal everyday I’m > struggling to get out these tiny little very unsatisfactory poops and > my butt itches. > However pretty much no matter what, good b.m.’s or not, the gas and > noises remain. > Very strange. Wouldnt you say? > I’m no expert. I have read some of your other posts. > I think > You have been tested for celiac disease and had a negative result? > Say you are on a low allergy gluten free diet? > One thing I picked up here, bran is usually wheat bran? > Your other symptoms sound very much as though they could be celiac disease > or gluten intolerance. I believe 20% of celiacs have constipation rather > than diarhea (I am never sure of the spelling of that darn word) anyway. > For all but the most severely affected person in our family with celiac > disease constipation is our problem. > I assume you are dairy free. I think Dons idea of being completely grain > free for a while is probably a good idea. Get your roughage from prunes or > the like ). Many celiacs, or gluten intolerant people apparently need a > completely grain free diet for a while. > Gas has certainly been a problem with me, but before going gluten free and > for a few months into the diet gas caused pain! > I have been gluten free now 2yrs and 2 months ) Yes counting > It is only in the last 4 or so months that I have really begun for feel > well. Before that on the gluten free diet I did not feel sick, but not well > either, energy, well being, optimism, enjoying my body, losing weight. > I was one of those celiacs who was a little overweight, though never obese. > You are going through a rough time, I hope you find the answers to your > problems and find good health soon. > Annemarie

Response:

Thanks Mark, I dont think know about bacterial overgrowth but when I eat high fiber breakfast cereal like All-Bran or take psyllium powder, I dont get the butt itching and discomfort at all. In fact – and WARNING this is gross – when I eat All-Bran cereal I dont even have to wipe!!!! I do wipe, but I dont have to if you know what I mean, there just isnt anything there! How weird is that? (There’s a question for our resident genius KMottus!!!!) I’m not eating All-Bran since I’m trying a gluten-free trial but boy do I miss my All-Bran. As far as gastroenterologists, I wouldnt think of trying all this stuff until getting thoroughly checked out, which I have. I’ve had several colonoscopies and endoscopies plus biopsies and blood tests in the last few years. Other than mild gastritic, no pathology comes up. Patrick – Hide quoted text — Show quoted text -> Those are the most striking samples. Other than that, as long I avoid > greasy foods and get plenty of fiber such as psyllium or bran cereal, > my b.m.’s are quite normal and regular. > Greasy foods and caffeine give me cramps and very loose stools if not > full on Big D. If I dont have psyllium or bran cereal everyday I’m > struggling to get out these tiny little very unsatisfactory poops and > my butt itches. > If your butt iches, it’s a clear sign that you have a bacterial overgrowth > in your intestines, probably candida. > I got rid of that with a sugar-free diet, hydrochoric acid+enzyme > supplements, garlic and other anti-fungal herbal teas. > I want to reiterate my previous advice, go and see a gastroenterologist, > your digestive system clearly isn’t working and it can be quite dangerous > since no matter how good the food is you eat, you’ll still suffer from > malnutrition if you can’t absorb adequate vitamins and minerals. > Cheers, > Mark.

Response:

Hi Susan! What is the miligrams of the Bentyl you are taking? I take the 20 mg and take it (now only when needed) 15 to 20 minutes before I eat. I also have the Levbid, which I now take when needed, which helps. I am on both if I am severe since I had surgery.When I am bad what I do is take the Bentyl 20mg before I eat, and then if I still have problems I take the Levbid 15 -20 afterwards. It doesn’t stop it all but I can tell it does ease it a lot compared to not taking it. Sometimes the medication is helping but since you are taking it you really can’t tell. UM MOM Susan

– Hide quoted text — Show quoted text -> Hi Mary & Susan & Patrick — > Since you were talking abou Bentyl – I thought I would ask a question of my > own – I am not really altogether sure if the Bentyl helps me or not. Is it > meant to be taken over a period of time before it helps with symptoms? My GI > doctor now has me on it 4 times a day. Unlike my Pentasa & 6mp, this one was > rather arbitrary, I think. My GP had prescribed it before I went into the > hospital and I noticed that it did nothing to keep me out of the hospital, > so I wonder how well it works. Is it supposed to be rather immediate? I > still feel spasms. And I notice blurred vision as a result of taking it. So > at times I wish not to take it. Does anybody take Levbid instead and have > anything to share in that regard as well? > Thanks > [s]

– Hide quoted text — Show quoted text -> the Bentyl does work. > Mary >> No they are not severe meds. The Bentyl can make some people drowsy. It >> helps a little with the noise and the pains from spasms but it is not in >> anyway a magic bullet. You also need to adjust your diet to what your > body >> will accept. Diet is very personal because everyone is different on what >> they can and cannot eat. UM MOM Susan >>> Susan, are antispasmodics really severe medications? Do they tend to >>> have rough side effects like make other symptoms worse? >>> Also, would an antispasmodic be likely to alleviate the strange >>> noises? >>>> You can ask your dr about an antispasmatic like Bentyl or Levbid to > help >>>> with the spasms in the colon. It does not stop the gas but sometimes >> can >>>> help eleviate the gas pains and help the gas to escape. Take them > 15-20 >>>> minutes prior to eating. UM MOM Susan >>>>> This is a very strange case of IBS that I have. Most of my life I’ve >>>>> been incredibly gassy, farting all the time. A few years ago the gas >>>>> changed, almost overnight, to that which can peel paint, if you know >>>>> what I mean. Last year my digestive system started making all kinds > of >>>>> noises a lot of the time, gurgling, sloshing, swishing, not seeming > to >>>>> correlate with eating or not eating. >>>>> Those are the most striking samples. Other than that, as long I > avoid >>>>> greasy foods and get plenty of fiber such as psyllium or bran > cereal, >>>>> my b.m.’s are quite normal and regular. >>>>> Greasy foods and caffeine give me cramps and very loose stools if > not >>>>> full on Big D. If I dont have psyllium or bran cereal everyday I’m >>>>> struggling to get out these tiny little very unsatisfactory poops > and >>>>> my butt itches. >>>>> However pretty much no matter what, good b.m.’s or not, the gas and >>>>> noises remain. >>>>> Very strange. Wouldnt you say?

Response:

Hi Mary & Susan & Patrick — Since you were talking abou Bentyl – I thought I would ask a question of my own – I am not really altogether sure if the Bentyl helps me or not. Is it meant to be taken over a period of time before it helps with symptoms? My GI doctor now has me on it 4 times a day. Unlike my Pentasa & 6mp, this one was rather arbitrary, I think. My GP had prescribed it before I went into the hospital and I noticed that it did nothing to keep me out of the hospital, so I wonder how well it works. Is it supposed to be rather immediate? I still feel spasms. And I notice blurred vision as a result of taking it. So at times I wish not to take it. Does anybody take Levbid instead and have anything to share in that regard as well? Thanks [s] – Hide quoted text — Show quoted text -> the Bentyl does work. > Mary > No they are not severe meds. The Bentyl can make some people drowsy. It > helps a little with the noise and the pains from spasms but it is not in > anyway a magic bullet. You also need to adjust your diet to what your > body > will accept. Diet is very personal because everyone is different on what > they can and cannot eat. UM MOM Susan >> Susan, are antispasmodics really severe medications? Do they tend to >> have rough side effects like make other symptoms worse? >> Also, would an antispasmodic be likely to alleviate the strange >> noises? >>> You can ask your dr about an antispasmatic like Bentyl or Levbid to > help >>> with the spasms in the colon. It does not stop the gas but sometimes > can >>> help eleviate the gas pains and help the gas to escape. Take them > 15-20 >>> minutes prior to eating. UM MOM Susan >>>> This is a very strange case of IBS that I have. Most of my life I’ve >>>> been incredibly gassy, farting all the time. A few years ago the gas >>>> changed, almost overnight, to that which can peel paint, if you know >>>> what I mean. Last year my digestive system started making all kinds > of >>>> noises a lot of the time, gurgling, sloshing, swishing, not seeming > to >>>> correlate with eating or not eating. >>>> Those are the most striking samples. Other than that, as long I > avoid >>>> greasy foods and get plenty of fiber such as psyllium or bran > cereal, >>>> my b.m.’s are quite normal and regular. >>>> Greasy foods and caffeine give me cramps and very loose stools if > not >>>> full on Big D. If I dont have psyllium or bran cereal everyday I’m >>>> struggling to get out these tiny little very unsatisfactory poops > and >>>> my butt itches. >>>> However pretty much no matter what, good b.m.’s or not, the gas and >>>> noises remain. >>>> Very strange. Wouldnt you say?

Response:

the Bentyl does work. Mary

– Hide quoted text — Show quoted text -> No they are not severe meds. The Bentyl can make some people drowsy. It > helps a little with the noise and the pains from spasms but it is not in > anyway a magic bullet. You also need to adjust your diet to what your body > will accept. Diet is very personal because everyone is different on what > they can and cannot eat. UM MOM Susan > Susan, are antispasmodics really severe medications? Do they tend to > have rough side effects like make other symptoms worse? > Also, would an antispasmodic be likely to alleviate the strange > noises? > > You can ask your dr about an antispasmatic like Bentyl or Levbid to help > > with the spasms in the colon. It does not stop the gas but sometimes > can > > help eleviate the gas pains and help the gas to escape. Take them 15-20 > > minutes prior to eating. UM MOM Susan > > > This is a very strange case of IBS that I have. Most of my life I’ve > > > been incredibly gassy, farting all the time. A few years ago the gas > > > changed, almost overnight, to that which can peel paint, if you know > > > what I mean. Last year my digestive system started making all kinds of > > > noises a lot of the time, gurgling, sloshing, swishing, not seeming to > > > correlate with eating or not eating. > > > Those are the most striking samples. Other than that, as long I avoid > > > greasy foods and get plenty of fiber such as psyllium or bran cereal, > > > my b.m.’s are quite normal and regular. > > > Greasy foods and caffeine give me cramps and very loose stools if not > > > full on Big D. If I dont have psyllium or bran cereal everyday I’m > > > struggling to get out these tiny little very unsatisfactory poops and > > > my butt itches. > > > However pretty much no matter what, good b.m.’s or not, the gas and > > > noises remain. > > > Very strange. Wouldnt you say?

Response:

> Those are the most striking samples. Other than that, as long I avoid > greasy foods and get plenty of fiber such as psyllium or bran cereal, > my b.m.’s are quite normal and regular. > Greasy foods and caffeine give me cramps and very loose stools if not > full on Big D. If I dont have psyllium or bran cereal everyday I’m > struggling to get out these tiny little very unsatisfactory poops and > my butt itches.

If your butt iches, it’s a clear sign that you have a bacterial overgrowth in your intestines, probably candida. I got rid of that with a sugar-free diet, hydrochoric acid+enzyme supplements, garlic and other anti-fungal herbal teas. I want to reiterate my previous advice, go and see a gastroenterologist, your digestive system clearly isn’t working and it can be quite dangerous since no matter how good the food is you eat, you’ll still suffer from malnutrition if you can’t absorb adequate vitamins and minerals. Cheers, Mark.

Response:

No they are not severe meds. The Bentyl can make some people drowsy. It helps a little with the noise and the pains from spasms but it is not in anyway a magic bullet. You also need to adjust your diet to what your body will accept. Diet is very personal because everyone is different on what they can and cannot eat. UM MOM Susan

> Susan, are antispasmodics really severe medications? Do they tend to > have rough side effects like make other symptoms worse? > Also, would an antispasmodic be likely to alleviate the strange > noises?

– Hide quoted text — Show quoted text -> You can ask your dr about an antispasmatic like Bentyl or Levbid to help > with the spasms in the colon. It does not stop the gas but sometimes can > help eleviate the gas pains and help the gas to escape. Take them 15-20 > minutes prior to eating. UM MOM Susan > > This is a very strange case of IBS that I have. Most of my life I’ve > > been incredibly gassy, farting all the time. A few years ago the gas > > changed, almost overnight, to that which can peel paint, if you know > > what I mean. Last year my digestive system started making all kinds of > > noises a lot of the time, gurgling, sloshing, swishing, not seeming to > > correlate with eating or not eating. > > Those are the most striking samples. Other than that, as long I avoid > > greasy foods and get plenty of fiber such as psyllium or bran cereal, > > my b.m.’s are quite normal and regular. > > Greasy foods and caffeine give me cramps and very loose stools if not > > full on Big D. If I dont have psyllium or bran cereal everyday I’m > > struggling to get out these tiny little very unsatisfactory poops and > > my butt itches. > > However pretty much no matter what, good b.m.’s or not, the gas and > > noises remain. > > Very strange. Wouldnt you say?

Response:

– Hide quoted text — Show quoted text -> This is a very strange case of IBS that I have. Most of my life I’ve > been incredibly gassy, farting all the time. A few years ago the gas > changed, almost overnight, to that which can peel paint, if you know > what I mean. Last year my digestive system started making all kinds of > noises a lot of the time, gurgling, sloshing, swishing, not seeming to > correlate with eating or not eating. > Those are the most striking samples. Other than that, as long I avoid > greasy foods and get plenty of fiber such as psyllium or bran cereal, > my b.m.’s are quite normal and regular. > Greasy foods and caffeine give me cramps and very loose stools if not > full on Big D. If I dont have psyllium or bran cereal everyday I’m > struggling to get out these tiny little very unsatisfactory poops and > my butt itches. > However pretty much no matter what, good b.m.’s or not, the gas and > noises remain. > Very strange. Wouldnt you say?

I’m no expert. I have read some of your other posts. I think You have been tested for celiac disease and had a negative result? Say you are on a low allergy gluten free diet? One thing I picked up here, bran is usually wheat bran? Your other symptoms sound very much as though they could be celiac disease or gluten intolerance. I believe 20% of celiacs have constipation rather than diarhea (I am never sure of the spelling of that darn word) anyway. For all but the most severely affected person in our family with celiac disease constipation is our problem. I assume you are dairy free. I think Dons idea of being completely grain free for a while is probably a good idea. Get your roughage from prunes or the like ). Many celiacs, or gluten intolerant people apparently need a completely grain free diet for a while. Gas has certainly been a problem with me, but before going gluten free and for a few months into the diet gas caused pain! I have been gluten free now 2yrs and 2 months ) Yes counting It is only in the last 4 or so months that I have really begun for feel well. Before that on the gluten free diet I did not feel sick, but not well either, energy, well being, optimism, enjoying my body, losing weight. I was one of those celiacs who was a little overweight, though never obese. You are going through a rough time, I hope you find the answers to your problems and find good health soon. Annemarie

Response:

Susan, are antispasmodics really severe medications? Do they tend to have rough side effects like make other symptoms worse? Also, would an antispasmodic be likely to alleviate the strange noises? – Hide quoted text — Show quoted text – > You can ask your dr about an antispasmatic like Bentyl or Levbid to help > with the spasms in the colon. It does not stop the gas but sometimes can > help eleviate the gas pains and help the gas to escape. Take them 15-20 > minutes prior to eating. UM MOM Susan > This is a very strange case of IBS that I have. Most of my life I’ve > been incredibly gassy, farting all the time. A few years ago the gas > changed, almost overnight, to that which can peel paint, if you know > what I mean. Last year my digestive system started making all kinds of > noises a lot of the time, gurgling, sloshing, swishing, not seeming to > correlate with eating or not eating. > Those are the most striking samples. Other than that, as long I avoid > greasy foods and get plenty of fiber such as psyllium or bran cereal, > my b.m.’s are quite normal and regular. > Greasy foods and caffeine give me cramps and very loose stools if not > full on Big D. If I dont have psyllium or bran cereal everyday I’m > struggling to get out these tiny little very unsatisfactory poops and > my butt itches. > However pretty much no matter what, good b.m.’s or not, the gas and > noises remain. > Very strange. Wouldnt you say?

Response:

You can ask your dr about an antispasmatic like Bentyl or Levbid to help with the spasms in the colon. It does not stop the gas but sometimes can help eleviate the gas pains and help the gas to escape. Take them 15-20 minutes prior to eating. UM MOM Susan

Response:

Hi Susan – welcome Hugs, Linda – Hide quoted text — Show quoted text – > Yes, it was CG — thanks for taking the time to talk about your experiences > with that. Goodness knows, this NOT a subject we can easily talk about to > other friends and such, just by virtue of how unpleasant it is. Like about > how the gas can cause pain to tender, irritated intestinal lining. I really > appreciated your input. > One thing I know that mystifed me, was how my most intense pain was actually > just at/below my belly button and my GI said I had an obstruction at my > illeum, I asked why did it hurt at my belly button — and he said, ever > squeeze a balloon on one end? Well you put pressure on down the line… and > when he said that, my pain made more sense. Same with you explaining how it > is that gas pain can hurt us, in a way it might not hurt others without IBD. > I think one of the most reassuring aspects of this board that I have found > is hearing yours (and others) experiences. It really is reassuring. So > thanks.. Once again. > AS to others here who haven’t met me, I think I gave a small intro into the > first msg I replied to, so excited by the "me 2" sensation I had in > discovering this group. I am 39 yrs old, and was diagnosed last year, > despite years of problems – I had my gall bladder removed in June and then > they finally, through ALL those *unlovely* tests (upper GI barium etc. > catscans, SBFT, colonoscopy, etc) discovered my CD, I fought to avoid > surgery, months in and out of (mostly in) the hospital, until they finally > said enough’s enough, and removed my illeum & some of my small > intestine….Being diagnosed made a world of difference and I know that the > proper meds and the surgery have made life less than the living hell that it > was. So I guess I just wanted to say hello to all I haven’t greeted. I > really appreciate this ng – it has made a world of difference in my morale. > — Thanks for being there! >… Hope this was informative. >> This is a very strange case of IBS that I have. Most of my life I’ve >> been incredibly gassy, farting all the time. A few years ago the gas >> changed, almost overnight, to that which can peel paint, if you know >> what I mean. Last year my digestive system started making all kinds of >> noises a lot of the time, gurgling, sloshing, swishing, not seeming to >> correlate with eating or not eating. >> Those are the most striking samples. Other than that, as long I avoid >> greasy foods and get plenty of fiber such as psyllium or bran cereal, >> my b.m.’s are quite normal and regular. >> Greasy foods and caffeine give me cramps and very loose stools if not >> full on Big D. If I dont have psyllium or bran cereal everyday I’m >> struggling to get out these tiny little very unsatisfactory poops and >> my butt itches. >> However pretty much no matter what, good b.m.’s or not, the gas and >> noises remain. >> Very strange. Wouldnt you say? > If the lining of your intestines is aggrivated, gas will hurt. Gas hurts me > almost as severely as wound and sore complications. Over-the-counter gas- > prevention aids are usually sufficient in dealing with gas. Bean-o is one > such product. > I have IBD, the lining of my intestines is very scarred and aggrivated, and > I therefore cannot eat most foods cooked in any type of oil without > experiencing great pain. Even chineese foods, like my favorite Lo Mein, is > unacceptable because of the oil. It also causes loose stools for some > strange reason. I suppose it has something to do with a reaction with > intestinal enzymes. Just remember that WATER is an essential part of > HEALTHY digestion, and OILS DON’T MIX WELL WITH WATER. Take a cup of water > and pour some canola oil into it to see what I mean. No matter how hard you > mix it, the oil will not dissolve into the water and will remain separate. > I don’t tolerate caffine well, either, but pain is not usually an issue > unless I consume a lot of it. Just for the sake of comfort, though, I stay > away from both caffine and oils. > Small amounts of natural grease in foods such as in beef doesn’t seem to > bother me all that much. The emphasis seems to be on oils as far as pain > and loose stools are concerned. > The gurgling noises could be anything, really. Sometimes my doctor says > they are good, sometimes bad. It could simply be a gas buildup that > suddenly shifts position in your intestines, or it could be a stool > blockage, or stool buildup movement. If these noises are accompanied with > considerable pain, it may be wise to see a doctor to verify that it is not > a blockage. It is possible that your intestines could rupture from a > blockage, But, it doesn’t sound like such in your case. > Hope this was informative.

Response:

>> If the lining of your intestines is aggrivated, gas will hurt. Gas > hurts me > No, only the sulfur gases are actually toxic. Carbon dioxide may have > metabolic effects. The others are largely harmless.

Then why does gas not hurt when my intestines are doing good? Why do others not hurt when they have gas? It’s because their intestines are not scarred or aggrivated. > almost as severely as wound and sore complications. Over-the-counter > gas- prevention aids are usually sufficient in dealing with gas. > Bean-o is one such product. > Over the counter aids are generally useless:

Bean-o works well for me, also Gas-X. – Hide quoted text — Show quoted text -> Simethicone and similar compounds merely prevent gas from mixing at > the surface of a liquid. How that could of any benefit is not clear. > Charcoal does not affect gas when the charcoal is consumed orally. It > appears to lose this ability because it gets wet in the gut. > Beano has also been tested and found unable to prevent gas production > as the company claims. > strange reason. I suppose it has something to do with a reaction with > intestinal enzymes. Just remember that WATER is an essential part of > HEALTHY digestion, and OILS DON’T MIX WELL WITH WATER. Take a cup of > water and pour some canola oil into it to see what I mean. No matter > how hard you mix it, the oil will not dissolve into the water and > will remain separate. > That oil and water does not mix doesn’t seem to have any relevance > insofar as your symptoms are concerned. It’s not clear about the > symptoms. It might have something to do with bile acids not being > reabsorbed.

Yes, it does. Remaining hydrated is essential to passing solid stools. As stated, oil will not mix with water. Also, the enzymes in the intestines are probably similar to water in that they will not mix with oil, and your body is, what, 90% water in composition? I can cause or prevent D by varying my oil intake to prove it does have an affect. If you’ve got IBD, drink some castor oil (you’ll be fine). You’ll soon see what I mean.

Response:

- Hide quoted text — Show quoted text -> Yes, it was CG — thanks for taking the time to talk about your > experiences with that. Goodness knows, this NOT a subject we can > easily talk about to other friends and such, just by virtue of how > unpleasant it is. Like about how the gas can cause pain to tender, > irritated intestinal lining. I really appreciated your input. > One thing I know that mystifed me, was how my most intense pain was > actually just at/below my belly button and my GI said I had an > obstruction at my illeum, I asked why did it hurt at my belly button > — and he said, ever squeeze a balloon on one end? Well you put > pressure on down the line… and when he said that, my pain made more > sense. Same with you explaining how it is that gas pain can hurt us, > in a way it might not hurt others without IBD. > I think one of the most reassuring aspects of this board that I have > found is hearing yours (and others) experiences. It really is > reassuring. So thanks.. Once again. > AS to others here who haven’t met me, I think I gave a small intro > into the first msg I replied to, so excited by the "me 2" sensation I > had in discovering this group. I am 39 yrs old, and was diagnosed last > year, despite years of problems – I had my gall bladder removed in > June and then they finally, through ALL those *unlovely* tests (upper > GI barium etc. catscans, SBFT, colonoscopy, etc) discovered my CD, I > fought to avoid surgery, months in and out of (mostly in) the > hospital, until they finally said enough’s enough, and removed my > illeum & some of my small intestine….Being diagnosed made a world of > difference and I know that the proper meds and the surgery have made > life less than the living hell that it was. So I guess I just wanted > to say hello to all I haven’t greeted. I really appreciate this ng – > it has made a world of difference in my morale. — Thanks for being > there! >… Hope this was informative. >> This is a very strange case of IBS that I have. Most of my life I’ve >> been incredibly gassy, farting all the time. A few years ago the gas >> changed, almost overnight, to that which can peel paint, if you know >> what I mean. Last year my digestive system started making all kinds >> of noises a lot of the time, gurgling, sloshing, swishing, not >> seeming to correlate with eating or not eating. >> Those are the most striking samples. Other than that, as long I >> avoid greasy foods and get plenty of fiber such as psyllium or bran >> cereal, my b.m.’s are quite normal and regular. >> Greasy foods and caffeine give me cramps and very loose stools if >> not full on Big D. If I dont have psyllium or bran cereal everyday >> I’m struggling to get out these tiny little very unsatisfactory >> poops and my butt itches. >> However pretty much no matter what, good b.m.’s or not, the gas and >> noises remain. >> Very strange. Wouldnt you say? > If the lining of your intestines is aggrivated, gas will hurt. Gas > hurts me almost as severely as wound and sore complications. > Over-the-counter gas- prevention aids are usually sufficient in > dealing with gas. Bean-o is one such product. > I have IBD, the lining of my intestines is very scarred and > aggrivated, and I therefore cannot eat most foods cooked in any type > of oil without experiencing great pain. Even chineese foods, like my > favorite Lo Mein, is unacceptable because of the oil. It also causes > loose stools for some strange reason. I suppose it has something to > do with a reaction with intestinal enzymes. Just remember that WATER > is an essential part of HEALTHY digestion, and OILS DON’T MIX WELL > WITH WATER. Take a cup of water and pour some canola oil into it to > see what I mean. No matter how hard you mix it, the oil will not > dissolve into the water and will remain separate. > I don’t tolerate caffine well, either, but pain is not usually an > issue unless I consume a lot of it. Just for the sake of comfort, > though, I stay away from both caffine and oils. > Small amounts of natural grease in foods such as in beef doesn’t seem > to bother me all that much. The emphasis seems to be on oils as far > as pain and loose stools are concerned. > The gurgling noises could be anything, really. Sometimes my doctor > says they are good, sometimes bad. It could simply be a gas buildup > that suddenly shifts position in your intestines, or it could be a > stool blockage, or stool buildup movement. If these noises are > accompanied with considerable pain, it may be wise to see a doctor to > verify that it is not a blockage. It is possible that your intestines > could rupture from a blockage, But, it doesn’t sound like such in > your case. > Hope this was informative.

Nice to meet ya. Glad I could help. Sounds like you’ve been thru a lot considering the time frame that you’ve been diagnosed. I am very empathetic of your situation. I may be young (22 years), but i’ve got the body of a 90 year-old. Disease SUCKS. This newsgroup is awesome. You’re right, it’s generally not fitting with ettiquette to talk about our problems with people in the real world, lest they get some type of mental-picture of something that they should be very thankful they don’t need to deal with. But that’s not usually the case. They’ll usually just get grossed-out. That’s what makes this group so great. Everyone here’s probably heard about everything or had it, and there’s nothing to be embarassed about. I’m not very good at taking care of myself, because I am careless in my eating and I am reluctant to get medical treatment until it’s absolutely necessary to prevent death. However, I can offer this simple dietary advice, which has helped me considerably thru the years : Drink plenty of fluids, preferrably AS MUCH clear liquid as you can ; stay away from grease and oils ; stay away from very dark liquids like coffee, and caffinated drinks. As for specific foods, you’ve just gotta experiment and discriminate by pain, and obviously, don’t go out eating anything spicey like suicide wings (strange how hot-sauce can cause so much D!). Follow these simple rules and you may find that your pain decreases a bit and you may develop more-managable bowel movements. Be well

Response:

> If the lining of your intestines is aggrivated, gas will hurt. Gas hurts me

No, only the sulfur gases are actually toxic. Carbon dioxide may have metabolic effects. The others are largely harmless. > almost as severely as wound and sore complications. Over-the-counter gas- > prevention aids are usually sufficient in dealing with gas. Bean-o is one > such product.

Over the counter aids are generally useless: Simethicone and similar compounds merely prevent gas from mixing at the surface of a liquid. How that could of any benefit is not clear. Charcoal does not affect gas when the charcoal is consumed orally. It appears to lose this ability because it gets wet in the gut. Beano has also been tested and found unable to prevent gas production as the company claims. > strange reason. I suppose it has something to do with a reaction with > intestinal enzymes. Just remember that WATER is an essential part of > HEALTHY digestion, and OILS DON’T MIX WELL WITH WATER. Take a cup of water > and pour some canola oil into it to see what I mean. No matter how hard you > mix it, the oil will not dissolve into the water and will remain separate.

That oil and water does not mix doesn’t seem to have any relevance insofar as your symptoms are concerned. It’s not clear about the symptoms. It might have something to do with bile acids not being reabsorbed.

Response:

Yes, it was CG — thanks for taking the time to talk about your experiences with that. Goodness knows, this NOT a subject we can easily talk about to other friends and such, just by virtue of how unpleasant it is. Like about how the gas can cause pain to tender, irritated intestinal lining. I really appreciated your input. One thing I know that mystifed me, was how my most intense pain was actually just at/below my belly button and my GI said I had an obstruction at my illeum, I asked why did it hurt at my belly button — and he said, ever squeeze a balloon on one end? Well you put pressure on down the line… and when he said that, my pain made more sense. Same with you explaining how it is that gas pain can hurt us, in a way it might not hurt others without IBD. I think one of the most reassuring aspects of this board that I have found is hearing yours (and others) experiences. It really is reassuring. So thanks.. Once again. AS to others here who haven’t met me, I think I gave a small intro into the first msg I replied to, so excited by the "me 2" sensation I had in discovering this group. I am 39 yrs old, and was diagnosed last year, despite years of problems – I had my gall bladder removed in June and then they finally, through ALL those *unlovely* tests (upper GI barium etc. catscans, SBFT, colonoscopy, etc) discovered my CD, I fought to avoid surgery, months in and out of (mostly in) the hospital, until they finally said enough’s enough, and removed my illeum & some of my small intestine….Being diagnosed made a world of difference and I know that the proper meds and the surgery have made life less than the living hell that it was. So I guess I just wanted to say hello to all I haven’t greeted. I really appreciate this ng – it has made a world of difference in my morale. — Thanks for being there! – Hide quoted text — Show quoted text ->… Hope this was informative. > This is a very strange case of IBS that I have. Most of my life I’ve > been incredibly gassy, farting all the time. A few years ago the gas > changed, almost overnight, to that which can peel paint, if you know > what I mean. Last year my digestive system started making all kinds of > noises a lot of the time, gurgling, sloshing, swishing, not seeming to > correlate with eating or not eating. > Those are the most striking samples. Other than that, as long I avoid > greasy foods and get plenty of fiber such as psyllium or bran cereal, > my b.m.’s are quite normal and regular. > Greasy foods and caffeine give me cramps and very loose stools if not > full on Big D. If I dont have psyllium or bran cereal everyday I’m > struggling to get out these tiny little very unsatisfactory poops and > my butt itches. > However pretty much no matter what, good b.m.’s or not, the gas and > noises remain. > Very strange. Wouldnt you say? > If the lining of your intestines is aggrivated, gas will hurt. Gas hurts me > almost as severely as wound and sore complications. Over-the-counter gas- > prevention aids are usually sufficient in dealing with gas. Bean-o is one > such product. > I have IBD, the lining of my intestines is very scarred and aggrivated, and > I therefore cannot eat most foods cooked in any type of oil without > experiencing great pain. Even chineese foods, like my favorite Lo Mein, is > unacceptable because of the oil. It also causes loose stools for some > strange reason. I suppose it has something to do with a reaction with > intestinal enzymes. Just remember that WATER is an essential part of > HEALTHY digestion, and OILS DON’T MIX WELL WITH WATER. Take a cup of water > and pour some canola oil into it to see what I mean. No matter how hard you > mix it, the oil will not dissolve into the water and will remain separate. > I don’t tolerate caffine well, either, but pain is not usually an issue > unless I consume a lot of it. Just for the sake of comfort, though, I stay > away from both caffine and oils. > Small amounts of natural grease in foods such as in beef doesn’t seem to > bother me all that much. The emphasis seems to be on oils as far as pain > and loose stools are concerned. > The gurgling noises could be anything, really. Sometimes my doctor says > they are good, sometimes bad. It could simply be a gas buildup that > suddenly shifts position in your intestines, or it could be a stool > blockage, or stool buildup movement. If these noises are accompanied with > considerable pain, it may be wise to see a doctor to verify that it is not > a blockage. It is possible that your intestines could rupture from a > blockage, But, it doesn’t sound like such in your case. > Hope this was informative.

Response:

This is a very strange case of IBS that I have. Most of my life I’ve been incredibly gassy, farting all the time. A few years ago the gas changed, almost overnight, to that which can peel paint, if you know what I mean. Last year my digestive system started making all kinds of noises a lot of the time, gurgling, sloshing, swishing, not seeming to correlate with eating or not eating. Those are the most striking samples. Other than that, as long I avoid greasy foods and get plenty of fiber such as psyllium or bran cereal, my b.m.’s are quite normal and regular. Greasy foods and caffeine give me cramps and very loose stools if not full on Big D. If I dont have psyllium or bran cereal everyday I’m struggling to get out these tiny little very unsatisfactory poops and my butt itches. However pretty much no matter what, good b.m.’s or not, the gas and noises remain. Very strange. Wouldnt you say?

Response:

- Hide quoted text — Show quoted text -> This is a very strange case of IBS that I have. Most of my life I’ve > been incredibly gassy, farting all the time. A few years ago the gas > changed, almost overnight, to that which can peel paint, if you know > what I mean. Last year my digestive system started making all kinds of > noises a lot of the time, gurgling, sloshing, swishing, not seeming to > correlate with eating or not eating. > Those are the most striking samples. Other than that, as long I avoid > greasy foods and get plenty of fiber such as psyllium or bran cereal, > my b.m.’s are quite normal and regular. > Greasy foods and caffeine give me cramps and very loose stools if not > full on Big D. If I dont have psyllium or bran cereal everyday I’m > struggling to get out these tiny little very unsatisfactory poops and > my butt itches. > However pretty much no matter what, good b.m.’s or not, the gas and > noises remain. > Very strange. Wouldnt you say?

If the lining of your intestines is aggrivated, gas will hurt. Gas hurts me almost as severely as wound and sore complications. Over-the-counter gas- prevention aids are usually sufficient in dealing with gas. Bean-o is one such product. I have IBD, the lining of my intestines is very scarred and aggrivated, and I therefore cannot eat most foods cooked in any type of oil without experiencing great pain. Even chineese foods, like my favorite Lo Mein, is unacceptable because of the oil. It also causes loose stools for some strange reason. I suppose it has something to do with a reaction with intestinal enzymes. Just remember that WATER is an essential part of HEALTHY digestion, and OILS DON’T MIX WELL WITH WATER. Take a cup of water and pour some canola oil into it to see what I mean. No matter how hard you mix it, the oil will not dissolve into the water and will remain separate. I don’t tolerate caffine well, either, but pain is not usually an issue unless I consume a lot of it. Just for the sake of comfort, though, I stay away from both caffine and oils. Small amounts of natural grease in foods such as in beef doesn’t seem to bother me all that much. The emphasis seems to be on oils as far as pain and loose stools are concerned. The gurgling noises could be anything, really. Sometimes my doctor says they are good, sometimes bad. It could simply be a gas buildup that suddenly shifts position in your intestines, or it could be a stool blockage, or stool buildup movement. If these noises are accompanied with considerable pain, it may be wise to see a doctor to verify that it is not a blockage. It is possible that your intestines could rupture from a blockage, But, it doesn’t sound like such in your case. Hope this was informative.

Response:

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